Screening & genetics

Explore ALD newborn screening, genetic testing, and family conversations through personal stories and research discussions from The Lucas Project.

ALD newborn screening: results and next steps

Blog
What a 2021 Conversation With Stephan Kemp Taught Me About ALD

Nic Adler looks back at his 2021 podcast with Stephan Kemp about ALD newborn screening, uncertain genetic results, and the questions his family brought to the conversation.

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ALD Family Genetic Testing: How to Talk to Your Family
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Should Siblings and Other Children in the Family Be Tested for ALD?
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What If Your Family Doesn’t Want to Get Tested for ALD?
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Screening and genetics guides

The Lucas Project is an educational resource for families. For medical questions, talk with your care team. For ALD information and support, visit ALD Connect.

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