Alison shares our family’s experience with adrenoleukodystrophy (ALD), from newborn screening to the questions and uncertainty that followed. Living in the Grey Zone explores the fear between appointments, the support we found in other families, and our search for better answers while raising our children.
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We hope our story inspires others, helps families, and encourages research. You’re welcome to use the film in your presentations. Enter your email below to access the download, embed the film from YouTube, or share the video link. Please credit: Lucas Project Foundation lucasprojectald.org