Ali Fatemi, MD, MBA: Leukodystrophy research and multidisciplinary neurological care

By The Lucas Project

Ali Fatemi, MD, MBA, is a pediatric neurologist and director of the Moser Center for Leukodystrophies at Kennedy Krieger Institute. He also holds a faculty appointment at Johns Hopkins University. His work connects clinical care with research into inherited white-matter disorders. Kennedy Krieger faculty profile

Specialty and research focus

The Moser Center’s research portfolio includes disease models, genetic and molecular approaches, and clinical research. These are team efforts across different leukodystrophies. Experimental approaches remain distinct from available treatment. Kennedy Krieger faculty profile Moser Center clinical team

Building a center for care and research

Kennedy Krieger’s account of Fatemi’s career describes early work developing imaging methods with a team studying leukodystrophies. He founded the Moser Center in 2013. His work therefore includes both scientific investigation and building a setting where clinicians and researchers can collaborate. Kennedy Krieger biography

The center studies multiple leukodystrophies. Its research program brings together laboratory investigation and clinical studies, with contributions from different investigators. A project involving one white-matter disorder should not automatically be presented as an adrenoleukodystrophy (ALD) project, and work led by another investigator should be credited accordingly. Moser Center research

For a family, a center’s breadth can be easier to navigate when the inquiry is specific. Someone seeking an evaluation, someone asking about an ALD study and someone considering a research gift may need different members of the team. Starting with the purpose of the inquiry helps the institution direct it appropriately.

How to contact the team

Fatemi’s official Kennedy Krieger profile lists 443-923-2750. Ask the team about referrals and the appropriate specialist. Kennedy Krieger faculty profile

How to support the work

The Kennedy Krieger Foundation provides an institutional giving route. Contact the foundation about directing a gift to the Moser Center or a specific ALD project. A general institute donation should not be described as a confirmed gift to Fatemi’s laboratory. Foundation giving

What to ask before supporting a project

Ask for the project’s name, principal investigator and research stage. Confirm whether the proposed gift supports ALD specifically, the Moser Center generally or the wider institute. Ask how the institution reports progress and what happens to restricted gifts if a project changes.

Professional contacts and giving designations were checked on November 11, 2026; confirm them with the institution before making arrangements.

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Eric Mallack, MD, MBE: Early cerebral ALD, MRI research and newborn-screening follow-up

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Troy Lund, MD, PhD: Blood and marrow transplantation, ALD mechanisms and biomarkers